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Review highlights lack of progress in creating real change for people with autism

This news post is over 1 year old

An independent review into the strategy has been carried out

An independent review of how Scotland is supporting people with autism has been published today (Friday 24 September).    

The Scottish Government and COSLA’s 10-year Autism Strategy - which comes to an end this year - set out with the vision that by 2021 autistic people would be “respected, accepted and valued by their communities and have confidence in services to treat them fairly so that they are able to have meaningful and satisfying lives”.   

An independent review on progress that has been made, and where improvements need to be made, has been published this week.

The review states: “After 10 years, valuable resources have been created and new and additional services delivered. However, real change for many autistic people, both in how they engage with services and in how they are supported to live productive lives, is not as evident. To have a greater impact, the services and support need to have greater reach, become embedded and be sustained.”   

This echoes the findings from the Cross-Party Group on Autism’s own 2020 review the Accountability Gap which found (from a survey of 900) that 72% of autistic people and families did not have enough support to meet their needs across a number of areas including education, care and employment.    

In the lead up to the May Holyrood election, National Autistic Society Scotland together with partners Scottish Autism and ENABLE Scotland campaigned under the banner of Our Voice Our Rights for a commissioner to promote and protect the rights of individuals and their families.    

This resulted in a commitment in the SNP Manifesto to introduce a commissioner as part of a Learning Disability, Autism and Neurodiversity Bill. Scoping work on this is due to begin shortly.   

Nick Ward, director of National Autistic Society Scotland, said: “What is clear from today’s review of the Scottish Strategy for Autism is that autistic people and their families are still, after 10 years, not getting the vital support that they need to live meaningful and fulfilled lives. The review echoes findings from last year’s Accountability Gap report produced by the Cross-Party Group on Autism which found that while progress had been made, 72% of individuals and their families did not get enough support to meet their needs.       

“Today’s review sets out some positive ways forward and we are delighted that Scottish Government has committed to establishing a commissioner. We believe a commissioner with robust powers to uphold rights, challenge bad practice and promote good will lever real change.”   

Suzanne from Dunfermline was part of the Our Voice Our Rights campaign and has an autistic son called Callum.

She said: “Callum has a lot of challenges, he is constantly having to deal with sensory issues and sounds and he needs someone supporting him most of the time. It’s difficult for people to understand what he is saying and so we need to be with him when he is out to help as well as explain his compulsion to touch people.    

“When Covid hit a lot of the services withdrew leaving us to deal with health education and social work issues. Over time that has got better but we’re still not receiving the level of support we had before the pandemic.   

“I think there needs to be a lot more joined up thinking, sometimes we end up going from service to service – there needs to be someone holding the system together, someone at a national level I can go to if there is an issue.    

“My hope is that when Callum leaves school he doesn’t end up sitting in a day centre all the time and that there are opportunities for him. He loves buses and would love to be a bus driver. That may not be possible but working or volunteering in and around buses would be amazing for him.”



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over 1 year ago

Can't say I'm surprised at the the percentage of families not receiving support for Autism. Where I live, there is very little support, and what support there is, have huge waiting lists. This is a problem across the board. For every little bit of support my autistic son has had, I have had to fight tooth and nail for! Makes me so mad when I have to fight for everything, yet other sections of society are getting gift cards for handing their needles into the pharmacy! All the while vital services are being cut - you couldn't make this up.

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susan Chambers
over 1 year ago

Families of autistic adults have been telling successive governments that services are poor for over 20 years. The elected representatives don't seem believe the stories of ordinary people as they allowed SG to commission another report from independent consultants which must have cost thousands of pounds. This money could have been spent on extra staff for One Stop Shops or training for medical and care staff which is what has been required for over 40 years when diagnosis first started. What difference will a commissioner make as we already have an abundance of Human Rights legislation and 3 levels of government? All these people in government are already highly paid so why will handing responsibility to another expensive level of regulation make any difference?